Real people, real stories

Welcome to “Real people, real stories”, where we bring together the heartfelt experiences of people living with Myasthenia Gravis (MG). 

Whether you're a patient, carer or healthcare professional, immerse yourself in the authentic stories of people living with MG.

These testimonies offer a wealth of information, understanding and solidarity to help you feel less isolated as you face your daily challenges. Explore the diverse stories to find inspiration, support and a deeper connection to the MG community.

Navigating Motherhood with Myasthenia Gravis

Sylwia Lukomska's journey of raising children while managing myasthenia gravis (MG) is both challenging and inspiring. From unexpected complications during childbirth to redefining motherhood, Sylwia shares her strategies for balancing symptom management and parenting.


Discover her insights on creating support networks, embracing imperfection, and finding humour amidst struggles. Read on for Sylwia's uplifting words and practical tips for mothers with MG. Dive into her story and find out how MG doesn't define her journey.

Mother holding her baby, navigating motherhood with Myasthenia Gravis

Real People, Real Myasthenia Gravis Stories

Man sharing his journey of turning despair into hope with Myasthenia Gravis

Turning despair into hope

At just 16 years old, Dimitris Zaftis (Vice President of H-MG, the Hellenic Myasthenia Gravis Association) began experiencing the early symptoms of MG.

Man fighting Myasthenia Gravis with a positive attitude

Fighting MG with positivity

Faced with the challenges of MG, Matthieu has turned his journey into a source of inspiration, a living example of unwavering determination.

Mother holding her baby, navigating motherhood with Myasthenia Gravis

Navigating motherhood with MG

Sylwia Lukomska, president of the MyasteniaFace2Face, shares her inspiring story of facing the trials of MG while raising her children.

   You are never alone  

No matter what stage of the journey you’re on, know that you can find the resources, support and community you need.