Keeping track of Myasthenia Gravis

Understanding the MG-ADL scale: A vital tool for managing Myasthenia Gravis

Keeping track of symptoms can help people with Myasthenia Gravis gain a sense of control when faced with the unpredictability of their condition. Importantly, it can also assist with treatment decisions as doctors can better determine what is or isn’t working. 

What is the MG-ADL Scale?

Neurologists have several ways to measure MG symptoms, but the most common is the MG Activities of Daily Living (MG-ADL) profile. This tool provides a structured evaluation of how MG impacts daily activities, focusing on specific muscle groups and physical functions (1). Becoming familiar with the MG-ADL scale is essential as it allows for better communication with healthcare providers and helps set realistic treatment goals. Watch the video to better understand how to track MG symptoms.

How the MG-ADL scale can improve your daily life?

 

The MG-ADL scale assesses activities such as speaking, breathing, and performing daily tasks like brushing teeth or standing up from a chair. Each activity is graded on a scale from 0 to 3, reflecting the severity of symptoms experienced (1).

Here’s an example of the scale for the symptom “Talking”:

Activity
Talking
Grade 0
Normal
Grade 1
Intermittent slurring or nasal speech
Grade 2
Constant slurring or nasal speech, but can be understood
Grade 3
Difficult to understand speech

Ideally, people living with MG would want to get to a place where their MG symptoms have minimal impact on their daily lives. We therefore talk about “Minimum Symptom Expression (MSE)”, which is achieved when a person scores zero or one on the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale (2).

Regularly completing the MG-ADL scale helps patients and their healthcare team monitor changes in MG symptoms over time. A decrease in the MG-ADL score by two points or more suggests improvement in symptoms (3).

By incorporating the MG-ADL scale into regular symptom tracking, people with MG can better understand how the condition affects their daily lives. By adopting this proactive approach, you can better communicate with healthcare providers and achieve a more thorough management of MG symptoms.

You may also like

Person tracking Myasthenia Gravis symptoms using the MG-ADL scale

Benefits of MG tracking

Consistency with tracking is essential to better understand symptoms, their impact and how they can change over time.

Person using smartphone for digital management of Myasthenia Gravis

Digital tools for MG care

Even if you're not the most tech-savvy person in the world, there are apps designed to make it easier to record and share information with your care team and family.

Doctor consulting with an elderly patient about Myasthenia Gravis

Talking to your doctor

Long-term management of MG takes a strong partnership between you and your care team.  Check our tips to help you get started.

REFERENCES :

1. Wolfe GI, et al. Neurology. 1999;52(7):1487-1489.

2. Albazli K, et al. Front Immunol. 2020;11:917.

3. Barnett C, et al. Neurol Clin. 2018;36(2):339-353.

4.Resources for professionals. Myasthenia Gravis Foundation of America. Accessed September 28, 2023. https://myasthenia.org/Professionals/Resources-for-Professionals

   You are never alone  

No matter what stage of the journey you’re on, know that you can find the resources, support and community you need.